Kidney Matters

There are many useful websites with a wealth of information on a wide range of aspects of kidney disease, what causes it, types of treatment and how to live with it.

Treatment of renal failure:

  • Link to the Oxford renal unit
  • How kidney disease is managed
  • Links to the Kidney Patient Guide with information on haemodialysis, peritioneal dialysis and transplants

Organ donation:

  • How to sign up to be an organ donor
  • Carry an NHS organ donor card
  • Information on the new laws taking effect from Spring 2020

Holidaying:

  • Links to dialysis units in the UK and abroad
  • Cruises providing on-board haemodialysis

Kidney  charities with useful websites:

  • Kidney Patient Guide: UK site full of useful information

  • National Kidney Federation: largest kidney patient charity in the UK with up-to-date reports on the All Party Parliamentary Kidney Group (APPKG)

  • Kidney Research UK: details of current research.
    Scientists in Bristol reveal how a faulty gene, involved in the kidney condition nephrotic syndrome, leads to kidney disease. Read more 

  • Oxford Kidney Unit: offers a range of renal patient information leaflets

  • Kidney Care UK: used to be the British Kidney Patient Association

  • Patient View: if your local unit is registered, information is given on how to view and download your latest blood & test results and records

Polycystic Kidney Disease

  • PKD Charity: supporting adults and children with polycystic kidney disease

Nutrition & Medication

  • Nutritionist Resource: quality nutritional advice from professionals

  • NHS Treatment of chronic kidney disease: including lifestyle changes, medication, coping with high blood pressure and cholesterol, water retention, anaemia etc.

  • DrugWatch: includes a warning on the use of GranuFlo and NaturaLyte, two substances marketed by Fresenius Medical Care that have been linked to an increase risk of heart attacks and other health complicaitons.